Background
Guidelines recommend incorporation of caregiver burden assessment and list significant
caregiver burden as a relative contraindication when considering left-ventricular
assist device (LVAD) implantation.
Methods
To assess national practices regarding caregiver burden assessment, in 2019 we administered
a 47-item survey to LVAD clinicians using 4 convenience samples.
Results
Responses were obtained from 191 registered nurses, 109 advance practice providers,
71 physicians, 59 social workers, and 40 others representing 132 LVAD programs; 125
of 173 total United States programs were included in the final analysis. While most
programs (83.2%) assessed caregiver burden, assessment was most frequently conducted
informally during social work evaluation (83.2%), with only 8.8% incorporating validated
measures of caregiver burden. Larger programs were more likely to use a validated
assessment measure (OR 6.68 [1.33-33.52]).
Conclusions
Future research should focus on how programs can standardize caregiver burden assessment
and how the level of burden may impact patient and caregiver outcomes.
KEYWORDS
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Article info
Publication history
Published online: February 28, 2023
Publication stage
In Press Journal Pre-ProofIdentification
Copyright
© 2023 International Society for Heart and Lung Transplantation. All rights reserved.
